Dementia or mild cognitive impairment: @ work in progress

In Finnish

This multidisciplinary project (elder law and labour law, psychology, occupational therapy, social and political science, and engineering) will provide new insights into what happens when people develop mild cognitive impairment or early stage dementia while still working, how this is influenced by legislation, and how it is experienced and potentially managed by those concerned. Start date for this three year project is 1 January 2018.

This project will focus on:

  • How laws, regulations and policies in different countries and organizations can support and/or hinder continued work and/or transition from work, how these are practiced by a variety of actors, and how they can be understood better by people with dementia/MCI and their employers;
  • The role of technology, the match between persons and technologies, testing new/adapted solutions to support continued work and/or transition from work, and the learning approaches and problem-solving strategies each person develops for adapting and managing working with cognitive impairment;
  • The creation of a new digital tool to support understanding, communication, and planning between people with MCI and their employers.

Leaders

Louise Nygård: coordinator, Sweden, Karolinska Institutet (Cactus Research Group
Anna Mäki-Petäjä-Leinonen: Sub-consortium PI, Finland, University of Eastern Finland
Arlene Astell: Sub-consortium PI, Canada, Toronto Rehab Institute
Jennifer Boger: Sub-consortium PI, Canada, University of Waterloo, lab’s webpage: www.itwil.ca
Ann-Charlotte Nedlund: Sub-consortium PI, Sweden, Linköping University

Members

Finland: University of Eastern Finland: Mervi Issakainen, Katja Karjalainen and Marjo Ylhäinen. The Age Institute: Sirkkaliisa Heimonen.

Sweden: Karolinska Institutet: Charlotta Ryd, Lena Rosenberg, Ann-Louise Engvall, Birgit Heuchemer. Malmö University/Karolinska institutet: Anders Kottorp.

Canada: University of Waterloo: Sheida Marashi, Karan Shastri. Ontario Shores: Parminder Flora.

 

Funders

In Finland: The Academy of Finland under the framework of the JPI MYBL.

Publications and presentations

Issakainen Mervi, Karjalainen Katja, Heimonen Sirkkaliisa, Ylhäinen Marjo, Astell Arlene, Boger Jennifer, Nedlund Ann-Charlotte, Nygård Louise, Mäki-Petäjä-Leinonen Anna ja Rissanen Sari: Muistisairaana työelä­mässä – tutkimushanke sairastuneiden kokemuksista ja oi­keuksien toteutumisesta. (Memory impairment and working life - a research project on the experiences and legal rights of people with mild cognitive impairment or dementia). Ajankohtaista. Gerontologia 32:4 (2018), 288–291.

Mäki-Petäjä-Leinonen A., Ylhäinen M., Karjalainen K., Issakainen M, Heimonen S, Nygård L, Rosenberg L, Nedlund A-C, Kottorp A, Astell A. & Boger J. (2018, Apr). Dementia or Mild Cognitive Impairment @ work in Progress. Socio-Legal Studies Associations Conference (SLSA) at Bristol University, UK, poster.

Flora, P., Boger, J., Shastri, K., Astell, A., Marashi, S., Mäki Petäjä Leinonen A., Nedlund, A-C., Heimonen, S., Rosenberg, L., Ylhäinen, M., Karjalainen, K., Kottorp, A., Ryd, C., Issakainen, M., & Nygård, L. (2018, Oct). Exploring the Role of Technology at Work among People with Dementia or Mild Cognitive Impairment. AGE-WELL, Vancouver, BC, Canada, poster.

Shastri, K., J. Boger, P. Flora, A. Astell, A. Nedlund, K. Karjalainen, A. Mäki-Petäjä-Leinonen, and L. Nygård. (2018, Oct). Dementia and mild cognitive impairment at work. AGE-WELL, Vancouver, BC, Canada, presentation.

Nygård, L., Astell, A., Mäki Petäjä Leinonen A., Nedlund, A-C., Boger, J., & Flora, P.K., Heimonen, S., Issakainen, M., Karjalainen, K., Kottorp, A., Marashi, S., Rosenberg, L., Ryd, C., Shastri, K., Ylhäinen, M. (2018, Oct). Mild Cognitive Impairment @Work in Progress. Canadian Association on Gerontology, Vancouver, BC, Canada, poster.

Nygård, L., Astell, A., Mäki Petäjä Leinonen A., Nedlund, A-C., Boger, J., & Flora, P.K., Heimonen, S., Issakainen, M., Karjalainen, K., Kottorp, A., Marashi, S., Rosenberg, L., Ryd, C., Shastri, K., Ylhäinen, M. (2018, Oct). Mild Cognitive Impairment @ Work in Progress. Alzheimer Europe, Barcelona, Spain, poster.

Shastri, K., J. Boger, P. Flora, A. Astell, A. Nedlund, K. Karjalainen, A. Mäki-Petäjä-Leinonen, and L. Nygård. (2018, Nov). Mild Cognitive Impairment@Work: In Progress. Annual Human Factors IUW, Toronto, ON, Canada, presentation.

Karjalainen, K., Ylhäinen, M. The UNCRPD and Private Law: Concepts of Disability and Reasonable Accommodation.Fundamental Rights at Work. International Colloquium, Denmark, 26.11.2018 - 28.11.2018, presentation.

Shastri, K., Boger, P. Flora, A. Astell, A. Nedlund, K. Karjalainen, A. Mäki-Petäjä-Leinonen, and L. Nygård. (2019, January).Determining Needs for Technology for Supporting People Living with Early-Onset Dementia at Work through UX Design. TRI Research Day, Toronto, ON, Canada, poster.

Marashi, S., Boger, J., Astell, A. , Nedlund, A-C., Karjalainen, K., Nygård, L. (2019, January).
Mild Cognitive Impairment (MCI) @ Work- Digital Tool. TRI Research Day, Toronto, ON, Canada, poster.

Shastri, K., S. Marashi, J., Boger, P. Flora, A. Astell, A. Nedlund, K. Karjalainen, A. Mäki-Petäjä-Leinonen, and L. Nygård (2019, May). Understanding the needs for technology design for people living with early-onset dementia or mild cognitive impairment at work. Symposium on Aging Research, Waterloo, ON, Canada, presentation.

Karjalainen, K., Ylhäinen, M. Velvollisuudesta kohtuullisiin mukautuksiin. Hyvinvointioikeuden päivät ,Tampere, Finland, 16.05.2019 - 17.05.2019, presentation.

Shastri, K., S. Marashi, J. Boger, P. Flora, A. Astell, A. Nedlund, K. Karjalainen, A. Mäki-Petäjä-Leinonen, and L. Nygård, "Determining needs for technology for people with MCI/dementia at work: a human factors approach", Rehabilitation Engineering and Assistive Technology Society of North America (RESNA), Toronto, ON, Canada, June 24-28, 2019, poster.

Shastri, K., J. Boger, P. Flora, A. Astell, A. Nedlund, K. Karjalainen, A. Mäki-Petäjä-Leinonen, and L. Nygård, "A CTA-DCD Model to Determine Design Requirements for Technology to Support People with Mild Cognitive Impairment / Dementia at Work", Proceedings of the 41st Annual Meeting of the Cognitive Science Society, CogSci 2019, Montreal, QC, Canada, July 27-28, 2019, poster. 

Karjalainen, K. Finding similarities and differences in Finnish and British Columbian legal systems. The Blog post of Canadian Center of Elder Law. 6 August 2019. https://www.bcli.org/finding-similarities-and-differences-in-finnish-and-british-columbian-legal-systems.  

Karjalainen, K., Ylhäinen, M. On the Obligation to Provide Reasonable Accommodation to an Employee with a Disability. The Society of Legal Scholars Annual Conference 2019. University of Central Lancashire 6.9.2019, presentation.

Mäki-Petäjä-Leinonen A., Ylhäinen M., Karjalainen K., Issakainen M, Heimonen S, Nygård L, Rosenberg L, Nedlund A-C, Kottorp A, Astell A. & Boger J. (2019, August). Dementia or Mild Cognitive Impairment @ work in Progress. Meaningful Relations in Aging and Dying conference at University of Helsinki, Finland, poster.